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ABC News Shines Light on Kenny the Kidney, PKD
There's been a flurry of very kind coverage lately of my quest to help cure PKD. Here are a few highlights:

** Kim Carollo wrote a great story that ran on the homepage of ABCnews.com.

** For the second year in a row, Andrew Galasetti invited me to write a guest post about PKD for Lyved.

** Merlyn Seeley and Diane Ursu of Examiner.com each wrote very nice stories about PKD and me; I've linked their stories to their names.

** And in much more important news, another molecular compound was found to have great potential for treating PKD. Pioglitazone is already approved for the treatment of diabetes, which means the path to testing it in humans should be shorter than if it were a brand-new compound.

So we've had a great couple of months. On October 9th I brought my manager's wife and daughter, Victoria and Genevieve, to the Connecticut Walk for PKD, where we met a number of wonderful people, including the dynamic coordinator Jaime Lazarus and a rugby player who told us that when he needed a kidney transplant, he told his team, and received more than 20 serious offers within a week. He ended up matching with a teammate, who went ahead with the donation. I also met Kristen Neary, the leader of Helen's Team. Kristen lost her infant daughter, Helen Grace, to ARPKD in 2002, and Helen's Team walks every year to fight the disease that took her away. This year alone, Helen's Team raised more than $9,500 to fight PKD. Some people just plain rock.

On October 23rd my manager was in Chicago for a PKD Foundation board meeting, but he flew back that night so we could all be ready for the TriState Walk for PKD. It was a gorgeous day. I met a young woman named Abby who played pro basketball in Australia and Sweden and now lives in southern New Jersey. She saw the article about me in ABC News, passed it around her family, and traveled up for the Walk, determined to do more to fight the disease that has debilitated her relatives the way it has mine. I also saw a bunch of old friends there -- Louis Collier and his wife Maria, Richard Roth, Matthew Fulgieri, Robin Strachan, Rich Mauch, Florence O'Berg, and many, many more.

I was particularly honored to meet Kristin Krittman, whose daughter Brooke, born with ARPKD, died just three hours after being born. Kristin and her husband decided to help make sure future parents won't have to go through the pain they endured, and their team, Brooke's Bunch, has raised more than $16,000 so far.

If you ever start to forget why we do these Walks -- why it matters to do all we can to cure this disease -- just look at this picture of Brooke, and imagine what her life might have been like if we had known what to do to keep her alive. Count all the specialists Julia Roberts has gone to see to help her two kids with ARPKD, Gage and Quinnlin.

For all the Kristen Nearys and Julia Robertses and Kristin Krittmans out there who raise money for this Walk to help future parents, thank you. And to all of my donors over the years, thank you.

Because of you, our future is brighter. And because you know us, our future is part of your own future. So when you help us, you also help yourself. We're cool with that.

You can still support me through December 31st! Please do!

-- Kenny



Thank you, Alexis Ohanian & Breadpig!
All around the country, we're gearing up for the 2010 Walk for PKD. I'll be at the one in Connecticut on October 9th, and then the one in New York City on October 24th. And my manager's old friend Alexis Ohanian, cofounder of Reddit and of the delightful uncorporation known as Breadpig, is inviting people to help us out. Thank you, Alexis!

Please help Alexis help us raise the money we need to cure PKD. Check out my fundraising page -- see me in costume, holding my manager's baby girl -- and donate today!



Let's Reward Donors, Shall We?
Okay, not everyone's comfortable with paying kidney donors. And we can talk about that sometime. For now, I'd just like to line up foursquare behind the effort to save lives by rewarding marrow donors.

Kidneys don't have bones, and so can't exactly donate bone marrow. But I wish I could! My manager had his blood drawn ten years ago in the hope that he might someday save a life by donating marrow. I hope you'll join him. Imagine if the person who needed that marrow was someone you loved - your sister or brother, your child, your best friend. More of us need to sign up so that there are enough marrow types available. Sign up today!



NYT Columnist Nicholas Kristof Shines a Light on PKD
When a two-time Pulitzer-prize-winning New York Times columnist calls attention to an obscure disease you can't stop thinking about, what can you feel but gratitude?

Dad's Life or Yours? You Choose [NYT]

Thank you, Mr. Kristof, for shining a light on one of the terrible dilemmas faced every day by families with PKD. The dilemmas remain, of course, but your attention lightens our burden and gives us hope. Thank you! And thank you, as well, to the Waddington family, for going on the record about PKD. Many are unwilling to do so. But we're stronger, and closer to a cure, when we stand up. You stood up. Thank you!!!   -- Kenny



Hudson Valley Walk Raises More Than $60,000!
Last Saturday I was thrilled to attend the Hudson Valley Walk for PKD in Bedford Hills. What a wonderful place. The Walk was so well organized -- thank you, Sam Friedlander, Heidi Cambareri, and many, many others -- that everyone could relax and just have fun. Plenty of food came from Shop-Rite and Whole Foods. And as always at a PKD event, there was plenty of bottled water.

Of course we weren't there just to have fun - but to help cure PKD. And Hudson Valley certainly did its part, bringing in more than $60,000 by the day of the Walk - and still counting!



At center is Luke Sclater-Booth, a young boy dealing with ARPKD, the brutal recessive form of PKD. At right is Stuart, Luke's dad. Stuart donated a kidney to Luke a couple of years ago. Luke's team, led by his mom Kirsten, helped raise more than $9,000 for research.


This Imperial Stormtrooper donated a kidney to a friend back in April. Did I feel jealous when some of the kids were more eager to talk to him than to me? You bet. Would I have made the same choice, if I was 10? You bet I would. Who doesn't love a stormtrooper?



This motorcycle club came together to support one of their own: The woman in the white T-shirt. And in so doing, they made PKD, for just a few moments, seem cool.


Even idyllic Bedford Hills, NY, is not exempt from profiling.





Heidi Cambareri, at left, put on the Hudson Valley Walk for five years before passing the torch this year. Heidi and my manager's wife, Victoria Brazell (center, great with child), are just two of the many wonderful people who came out to Walk for PKD. Thanks, everyone!! We'll see some of you in Manhattan on October 25th!  - Kenny



Kenny is raising money to help scientists cure polycystic kidney disease, or PKD. Learn More